“Me first”—that’s how Tedros Adhanom Ghebreyesus, head of the World Health Organization (WHO), described the wealthy world’s response to the COVID-19 pandemic when he kicked off negotiations for a global “pandemic treaty” in December 2021. Even before vaccines had proved safe and effective, rich countries had purchased enough doses to cover their entire population several …
In a world first, U.K. regulators have approved a therapy that uses CRISPR, the Nobel Prize–winning gene-editing tool invented in 2012. The treatment has been shown to help people with beta thalassemia and sickle cell disease, both inherited blood disorders that involve defects in the oxygen-carrying protein haemoglobin. It relies on removing blood stem cells …
UK approves CRISPR gene therapy for SCD; The latest health stories from around the world Read More »
The U.S. Food and Drug Administration last week approved a genetic treatment for the blood disorder beta-thalassemia, marking the third U.S. gene therapy for a rare disease. www.science.org/content/article/news-glance-new-gene-therapy-europe-s-drought-and-black-hole-s-photon-ring? The disorder causes low haemoglobin and severe anaemia, and the regular blood transfusions used to treat it can cause iron build-up that damages organs. The new treatment, …
FDA approves another rare blood disorder treatment, sickle cell treatment on its way Read More »
Sickle cell disease (SCD) remains a cause for concern in India, with figures placing the country as having the second highest burden in the world after Nigeria. Following World Sickle Cell Disease Day 2022, observed on the 19th June, awareness campaigns took place on an international level. “There is an urgent need to notify sickle …
India may have the second highest SCD burden in the world Read More »
India has the second highest burden of sickle cell disease in the world. Speaking at an Apollo Hospitals event in June, Dr Gaurav Kharya, clinical lead at the Centre for Bone Marrow Transplant and Cellular Therapy, identified a “‘sickle cell belt’, that is, a significant population of the Deccan plateau of Central India, northern Kerala …
The Union Health Ministry has created a draft policy that could help to identify hemoglobinopathies, thalassemia and sickle cell disease. With sickle cell anaemia reaching prevalences of up to 35 percent in some communities, such a programme could identify many unaware of their status and who go without treatment as a result. Titled ‘Prevention and …
Sickle cell disease is endemic among some populations in India. As a genetically inherited condition some populations are disproportionately affected. In India. There are many poorer, rural areas in which the disease is prevalent, as well as within a number of tribal populations. Marking June 19th as World sickle cell day, charities asked that the …
Sickle cell disease (SCD) in endemic in Chhattisgarh, a new survey reveals. Carried out between 2008 and 2016 by the State Health Resource Centre in Raipur, the survey found that ten percent of children born in Chhattisgarh are born with SCD, which affects a tenth of the state’s 27.9 million-strong population. Especially worrisome is the …
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