Advocacy groups for those suffering from rare diseases within India have voiced their disappointment regarding the National Policy for Rare Diseases 2020 Bill, arguing that – in many cases – the Bill offers no support to those affected by rare diseases at all. An estimated one in twenty Indians suffer from illnesses that full under […]
rare disease
New central guidelines for gene therapy
New guidelines devised by the Indian Council of Medical Research (ICMR) may help to standardise gene therapy product development and clinical trials. Gene therapy has the potential for transformative change for the potential seventy million individuals residing in India that are affected by rare diseases. This is one of the key aims of the guidelines, […]
Is genome sequencing the answer to rare diseases?
Rare diseases — despite the infrequency that the name confers — cumulatively affect around 350 million people worldwide. This figure includes roughly seventy million Indians. Could genome sequencing prove to be the tool that begins to spark medical innovation and diagnosis for the millions affected by such disorders? The Economic Times notes a recent case […]