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Progeria: The importance of raising awareness and hope

Earlier this year, I wrote about the efforts of the Progeria Research Foundation to offer new hope to children affected by the rare disease progeria, by boosting access to the drug lonafarnib. To better understand the lives of those affected progeria and the work of the Progeria Research Foundation, I interviewed Audrey Gordon, President and …

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Progeria: New hope in India?

There may be a new hope in India for those affected by a condition known as progeria. As reported by ETHealthworld.com, a programme has been launched in India to enable those affected to access the drug lonafarnib.  As explained in a Pharmaceutical Technology article, “lonafarnib was initially studied as a potential cancer therapy, but later …

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