Health issues in India
Yesterday marked World Haemophilia Day, an opportunity to raise awareness of the condition and its largely hidden footprint in India. For India’s many haemophiliacs, suffering is often in silence. Haemophilia is a genetic condition which means sufferers do not have enough clotting factor. This refers to a group of proteins in the blood which works […]
After fifteen years, a father has won a legal battle over medical expenses he paid to treat his daughter’s genetic condition. The Gujarat High Court has ruled in favour of Harshadkumar Pandya, an assistant teacher in Rajpipla, whose daughter was born with Silver-Russell syndrome, a form of dwarfism. Fifteen years back, on the advice of […]
Parents of children affected with thalassemia in Telangana have hit back at a new policy reducing health benefits for families battling the disease. Thalassemia is a genetically inherited blood disorder. With between 10,000 and 12,000 children are born with the disease every year, India is believed to be home to forty million people who l […]
The Union Health Ministry has created a draft policy that could help to identify hemoglobinopathies, thalassemia and sickle cell disease. With sickle cell anaemia reaching prevalences of up to 35 percent in some communities, such a programme could identify many unaware of their status and who go without treatment as a result. Titled ‘Prevention and […]
Around 97,000 children in India suffer from type 1 diabetes. In Delhi alone around 32 children per every 1,000 are affected by the disease. Indians suffer a genetic predisposition to diabetes which partially accounts for the elevated numbers of diabetics in India compared to other nations. A number of genes have been uncovered which could […]
People with genetic conditions have routinely been excluded from health insurance policies in India. With the law now falling on their side, at least in Delhi, could the situation of those suffering with genetic diseases improve? The Delhi High Court has ruled that a currently used clause that allowed insurance companies to deny an individual […]
Gujarat is expanding a number of prevention policies with the aim of making the state thalassemia free. Foremost among the proposed policies is the intention to make thalassemia testing mandatory for everyone, with a focus on testing women before they give birth. India is considered to be the world’s capital for thalassemia cases, with 10,000 […]
